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It is reported that the thesis section is available, to publish abstracts of postgraduate theses in the disciplinary field. Who submits your thesis, must present the title, abstract, key words (include Occupational Therapy), and a summary of 2 to 3 pages of your thesis. And `present it in Spanish, English and / or Portuguese.

Self-perception of multiple sclerosis: The person facing their occupations

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Vol. 21 No. 1 (2021): Junio
https://doi.org/10.5354/0719-5346.2021.56854

Abstract

Goal: The presence of a multiple sclerosis (MS) diagnosis, compromises the occupational performance of affected people. The purpose of the study was to find out how population which presents MS perceives their health status and quality of life, in relation to their daily lives. In addition, to investigate the perspective of occupational therapists about MS and people who suffer from it. Methodology: A mixed methodology was proposed, using qualitative thematic analysis through interviews, focus group and the COPM. Quantitatively, with a descriptive approach, a statistical data analysis was carried out after administering the LHS, SF-36 and online questionnaire for professionals. There were 70 participants: 15 people with MS and 55 occupational therapists. Results: Activities of daily living (ADL) and the loss of worker’s role stand out as the main limitations in occupational performance. Furthermore, participants state that the needs of this population are not covered by the public health system. This affects their quality of life. Occupational therapists express the need for promoting research in this area, highlighting therapeutic intervention in the user’s natural environment. Conclusions: ADL and IADL are identified as a challenge in daily life of the MS community, where the worker’s role brings a hug significance to person’s identity. There is a need for a change in the approach to care of people with MS, considering central factors for everyday life from a biopsychosocial perspective.

Keywords:

Quality of life. Multiple Sclerosis. Neurological Rehabilitation. Occupational Therapy.

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Abal Rey, P., Canosa Domínguez, N., & García, T. P. (2021). Self-perception of multiple sclerosis: The person facing their occupations. Revista Chilena De Terapia Ocupacional, 21(1), 11–26. https://doi.org/10.5354/0719-5346.2021.56854
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Revista Chilena de Terapia Ocupacional
Facultad de Medicina
Universidad de Chile
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